An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).

Mayhew, A., Mazzone, E., Eagle, M., Duong, T., Ash, M., Decostre, V., Vandenhauwe, M., Klingels, K., Florence, J., Main, M., Bianco, F., Henrikson, E., Servais, L., Campion, G., Vroom, E., Ricotti, V., Goemans, N., Mcdonald, C., Mercuri, E. M., Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy, <<DEVELOPMENTAL MEDICINE & CHILD NEUROLOGY>>, 2013; 55 (11): 1038-1045. [doi:10.1111/dmcn.12213] [http://hdl.handle.net/10807/53516]

Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

Mercuri, Eugenio Maria
2013

Abstract

An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).
2013
Inglese
Mayhew, A., Mazzone, E., Eagle, M., Duong, T., Ash, M., Decostre, V., Vandenhauwe, M., Klingels, K., Florence, J., Main, M., Bianco, F., Henrikson, E., Servais, L., Campion, G., Vroom, E., Ricotti, V., Goemans, N., Mcdonald, C., Mercuri, E. M., Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy, <<DEVELOPMENTAL MEDICINE & CHILD NEUROLOGY>>, 2013; 55 (11): 1038-1045. [doi:10.1111/dmcn.12213] [http://hdl.handle.net/10807/53516]
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/10807/53516
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