Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.
Bertoli, M., Biasini, G., Calignano, M., Celani, G., De Grossi, G., Digilio, M., Fermariello, C., Loffredo, G., Luchino, F., Marchese, A. M., Mazotti, S., Menghi, B., Razzano, C., Tiano, C., Zambon Hobart, A., Zampino, G., Zuccalà, G., Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy, <<JOURNAL OF INTELLECTUAL DISABILITY RESEARCH>>, 2011; 55 (8): 801-820. [doi:10.1111/j.1365-2788.2011.01432.x] [http://hdl.handle.net/10807/4842]
Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy
Zampino, Giuseppe;Zuccalà, G.
2011
Abstract
Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.
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