Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).
Mosconi, P., Roberto, A., Cerana, N., Colombo, N., Didier, F., D'Incalci, M., Lorusso, D., Peccatori, F. A., Artioli, G., Cavanna, L., Ceccherini, R., Cirigliano, G., Comerci, G., Cormio, G., Crippa, A., Farolfi, A., Febbraro, A., Giardina, D., Greggi, S., Lalle, M., Lapresa, M., Marzola, M. C., Merisio, C., Mosconi, A. M., Peiretti, M., Ricci, G., Ronzino, G., Scambia, G., Scollo, P., Sina, F., Stella, G. C., Tomao, F., Vici, P., Zola, P., Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study, <<JOURNAL OF OVARIAN RESEARCH>>, 2022; 15 (1): 1-9. [doi:10.1186/s13048-022-00970-w] [https://hdl.handle.net/10807/283316]
Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study
Lorusso, Domenica;Cirigliano, Giovanni;Comerci, Gianluca;Marzola, Maria Cristina;Ricci, Giuseppe;Scambia, Giovanni;
2022
Abstract
Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).
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