: The May 2022 proposal from the European commission for a 'European health data space' envisages advantages for health from exploiting the growing mass of health data in Europe. However, key stakeholders have identified aspects that demand clarification to ensure success. Data will need to be freed from traditional silos to flow more easily and to cross artificial borders. Wide engagement will be necessary among healthcare professionals, researchers, and the patients and citizens that stand to gain the most but whose trust must be won if they are to allow use or transfer of their data. This paper aims to alert the wider scientific community to the impact the ongoing discussions among lawmakers will have. Based on the literature and the consensus findings of an expert multistakeholder panel organised by the European Alliance for Personalised Medicine (EAPM) in June 2022, it highlights the key issues at the intersection of science and policy, and the potential implications for health research for years, perhaps decades, to come.

Horgan, D., Hajduch, M., Vrana, M., Soderberg, J., Hughes, N., Omar, M. I., Lal, J. A., Kozaric, M., Cascini, F., Thaler, V., Solà-Morales, O., Romão, M., Destrebecq, F., Sky Gross, E., European Health Data Space-An Opportunity Now to Grasp the Future of Data-Driven Healthcare, <<HEALTHCARE>>, 2022; 10 (9): N/A-N/A. [doi:10.3390/healthcare10091629] [https://hdl.handle.net/10807/227109]

European Health Data Space-An Opportunity Now to Grasp the Future of Data-Driven Healthcare

Cascini, Fidelia;
2022

Abstract

: The May 2022 proposal from the European commission for a 'European health data space' envisages advantages for health from exploiting the growing mass of health data in Europe. However, key stakeholders have identified aspects that demand clarification to ensure success. Data will need to be freed from traditional silos to flow more easily and to cross artificial borders. Wide engagement will be necessary among healthcare professionals, researchers, and the patients and citizens that stand to gain the most but whose trust must be won if they are to allow use or transfer of their data. This paper aims to alert the wider scientific community to the impact the ongoing discussions among lawmakers will have. Based on the literature and the consensus findings of an expert multistakeholder panel organised by the European Alliance for Personalised Medicine (EAPM) in June 2022, it highlights the key issues at the intersection of science and policy, and the potential implications for health research for years, perhaps decades, to come.
2022
Inglese
Horgan, D., Hajduch, M., Vrana, M., Soderberg, J., Hughes, N., Omar, M. I., Lal, J. A., Kozaric, M., Cascini, F., Thaler, V., Solà-Morales, O., Romão, M., Destrebecq, F., Sky Gross, E., European Health Data Space-An Opportunity Now to Grasp the Future of Data-Driven Healthcare, <<HEALTHCARE>>, 2022; 10 (9): N/A-N/A. [doi:10.3390/healthcare10091629] [https://hdl.handle.net/10807/227109]
File in questo prodotto:
File Dimensione Formato  
healthcare-10-01629.pdf

accesso aperto

Tipologia file ?: Versione Editoriale (PDF)
Licenza: Creative commons
Dimensione 298.59 kB
Formato Adobe PDF
298.59 kB Adobe PDF Visualizza/Apri

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.

Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/10807/227109
Citazioni
  • ???jsp.display-item.citation.pmc??? 4
  • Scopus 21
  • ???jsp.display-item.citation.isi??? 18
social impact