Objectives: Auto-inflammatory Diseases (AIDs) are agroup of diseases with a strong genetic component, inducing an inappropriate activation of innate immunity.The patients with pediatric onset will face the transitionalcare (TC) from a pediatrician to an adult care setting, during the critical phase of the adolescence. That implies arisk of failure and drop out, due to the different approach ofpediatrician compared to the adult doctor. To describe themodel of TC for AIDs from a paediatric to adult centre of twohospitals in Rome, and to pointing out the different stepsemerged from specific experiences. Methods: In November 2020, a Board of paediatriciansand internists discussed their experience to identify “hot topics” for a successful management of TC. Results: The Board agreed on the optimal time for thetransition (12-18 years). Specific elements to be consideredare the reached level of emotional and intellectual matu-rity, and the clinical stability of the disease. Conclusions: The TC of patients with chronic AIDs, re-quires a strong cooperation to define the adequate follow-up, and to guarantee the compliance to the treatment. Thismodel allows us to investigate AIDs complex cases requiring a long period of observations.

Soscia, F., Sicignano, L., Verrecchia, E., Ardenti Morini, F., Massaro, M., Civitelli, F., Ferrari, F., Rigante, D., Cortis, E., Manna, R., Transitional care management in patients with auto-inflammatory diseases: experience of cooperation of a paediatric and adult centre, <<JOURNAL OF TRANSITION MEDICINE>>, 2022; 2022 (4(1): 20210007): 1-4. [doi:10.1515/jtm-2021-0007] [http://hdl.handle.net/10807/195841]

Transitional care management in patients with auto-inflammatory diseases: experience of cooperation of a paediatric and adult centre

Sicignano, Ll;Verrecchia, E;Massaro, Mg;Rigante, D;Manna, R
2022

Abstract

Objectives: Auto-inflammatory Diseases (AIDs) are agroup of diseases with a strong genetic component, inducing an inappropriate activation of innate immunity.The patients with pediatric onset will face the transitionalcare (TC) from a pediatrician to an adult care setting, during the critical phase of the adolescence. That implies arisk of failure and drop out, due to the different approach ofpediatrician compared to the adult doctor. To describe themodel of TC for AIDs from a paediatric to adult centre of twohospitals in Rome, and to pointing out the different stepsemerged from specific experiences. Methods: In November 2020, a Board of paediatriciansand internists discussed their experience to identify “hot topics” for a successful management of TC. Results: The Board agreed on the optimal time for thetransition (12-18 years). Specific elements to be consideredare the reached level of emotional and intellectual matu-rity, and the clinical stability of the disease. Conclusions: The TC of patients with chronic AIDs, re-quires a strong cooperation to define the adequate follow-up, and to guarantee the compliance to the treatment. Thismodel allows us to investigate AIDs complex cases requiring a long period of observations.
Inglese
Soscia, F., Sicignano, L., Verrecchia, E., Ardenti Morini, F., Massaro, M., Civitelli, F., Ferrari, F., Rigante, D., Cortis, E., Manna, R., Transitional care management in patients with auto-inflammatory diseases: experience of cooperation of a paediatric and adult centre, <<JOURNAL OF TRANSITION MEDICINE>>, 2022; 2022 (4(1): 20210007): 1-4. [doi:10.1515/jtm-2021-0007] [http://hdl.handle.net/10807/195841]
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/10807/195841
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