This chapter recounts the story of my brother Valerio, a carrier of Brugada syndrome, and his experience with the Implantable Cardioverter Defibrillator (ICD). My name is Serena, I am a 25 year old psychologist, and with the present contribution I would like to give the reader an idea of what it means to face, from both my personal point of view and, indirectly, though my brother’s words, the diagnosis of a genetic disease that makes ICD implantation necessary to survive. Specifically, I would like to try to explain how the implantation of the device affects the individual’s life, relationships, and even parenting; but also how a person can successfully learn to live with a defibrillator, seeing the ICD as an important resource.
Santagostino, S., Pietrabissa, G., Castelnuovo, G., Borgia, F., Living with an Implantable Cardioverter Defibrillator: The Road to Resilience, in Riccardo Proiett, R. P., Gian Mauro Manzon, G. M. M., Giada Pietrabiss, G. P., Gianluca Castelnuov, G. C. (ed.), Psychological, Emotional, Social and Cognitive Aspects of Implantable Cardiac Devices, Springer International Publishing AG, Cham 2017: 279- 289. 10.1007/978-3-319-55721-2_18 [http://hdl.handle.net/10807/121842]
Living with an Implantable Cardioverter Defibrillator: The Road to Resilience
Pietrabissa, Giada;Castelnuovo, Gianluca;
2017
Abstract
This chapter recounts the story of my brother Valerio, a carrier of Brugada syndrome, and his experience with the Implantable Cardioverter Defibrillator (ICD). My name is Serena, I am a 25 year old psychologist, and with the present contribution I would like to give the reader an idea of what it means to face, from both my personal point of view and, indirectly, though my brother’s words, the diagnosis of a genetic disease that makes ICD implantation necessary to survive. Specifically, I would like to try to explain how the implantation of the device affects the individual’s life, relationships, and even parenting; but also how a person can successfully learn to live with a defibrillator, seeing the ICD as an important resource.
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